What does patient and public involvement feel like?

town meeting

Alison Turner explores a recent study of patient and public involvement in clinical commissioning, which found that PPI representatives are often uncertain about their role and how their contribution is used.

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Should mental health service user-led organisations adapt to management culture to bring about meaningful change?

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Lucy Simons considers the findings of an ethnographic study led by Diana Rose that observed in-depth how service user-led organisations work to change mental health services.

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Arts group for young people with learning disabilities provides benefits for those involved and wider community

Theatre

In times of economic hardship, it would be easy to discount the contribution to emotional well being that taking part in arts activities can afford us. However, the arts offer opportunities for self expression and people with learning disabilities have the right to take part in creative and expressive activities, achieving new goals and potentially [read the full story…]

Lack of effective services for young people with challenging behaviour at transition tends to increase protectiveness of parents

Family

There is very little available in the literature that focuses on the perspectives of families caring for someone with severe or profound learning disabilities and challenging behaviour. This ethnographic study aimed to improve understanding of the experiences and perspectives of families, in particular mothers, of young people with these complex needs. The researcher carried out [read the full story…]