Results: 4

For: prader-willi syndrome

Study findings suggest need for policy reconciliation between duty of care and promoting autonomy

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National policy in the UK surrounding the support of people with learning disabilities stresses the autonomy of people in receipt of support and the need for those who support them to maximise this. However, support workers also have a duty of care and can find these two policy objectives in conflict with each other. The [read the full story…]

Mindfulness based programmes may be effective in producing lifestyle changes in adults with Prader-Willi syndrome


People with Prader-Willi Syndrome (PWS) often have excessive appetite and a decreased calorific requirement owing to low energy expenditure levels. This very small study involved three people with PWS who took part in a long-term, multicomponent mindfulness-based health wellness programme aimed at reducing levels of obesity helping them to change their lifestyles. The components of [read the full story…]

Common behavioural and psychiatric problems in Prader-Willi syndrome identified in review


This review of existing research looked at behavioural and psychiatric problems in people with Prader-Willi syndrome, a complex genetic disorder. The review found hyperphagia (compulsively overeating over a long period) compulsions/repetitive behaviour, self-injury (especially skin-picking), and aggressive behaviours to be common in people with Prader–Willi syndrome. The most frequently found psychiatric disorders were psychotic, affective, [read the full story…]

Focus on behavioural problems of adults with Prader-Willi syndrome identifies need for longitudinal studies.


This study looked at the behavioural phenotype of people with Prader-Willi syndrome and the relationship between behavioural problems and age groups, genetic subtypes and BMI categories. It found statistically significant differences between age groups and between genetic subtypes but none in different BMI categories. The authors suggest that special attention should be paid to behavioural [read the full story…]