Josie Dixon considers a paired-cluster randomised controlled trial of an advance care planning intervention, called the Family Carer Decision Support (FCDS) intervention, undertaken by Kevin Brazil and colleagues (2018) in dementia nursing homes.
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Samei Huda highlights a recent RCT of antipsychotics (risperidone and haloperidol) versus placebo for symptoms of delirium in palliative care, which suggests we need non-drug alternatives for this group of patients.
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People with learning disabilities are living longer than ever before, so more people are likely to need palliative care services and end-of-life care.
Here, Fawn Harrad looks at a study, which set out to listen specifically to the views of people with a learning disability and family carers in receipt of palliative care services.
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This report from the Nuffield Trust is an important addition to the literature base on end of life care as it attempts to quantify the costs involved in end of life care, from the perspectives of the various services involved. Although there are limitations to the cost estimates, which are explicitly acknowledged, the findings will [read the full story…]
Josephine Neale summarises a recent review of qualitative evidence that finds carers’ views are mixed and lie on a spectrum of acceptance of their relative as actively dying with dementia.
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This collection of case studies is aimed at all people involved in the development and delivery of quality health services, in particular, commissioners, local authorities, voluntary sectors, and health professionals in all settings, including primary and secondary care. Some of the CCGs are also working with organisations from the retail sector, for example John Lewis. [read the full story…]
Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. This short guide has been written for Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. Commissioners need to be aware that palliative care for children is very different to palliative care for adults, [read the full story…]
Earlier this week, we posted about a study by Dr Tuffrey-Wijne and her colleagues which described the process of the development of guidelines to support decision making about disclosure or non-disclosure of bad news about life limiting illness to people with learning disabilities. That study was part of a broader programme of research that has [read the full story…]
Last week we posted about a study looking at end of life are for people with learning disabilities through the experiences of the staff supporting them. This week, we would like to draw your attention to a new film that has been produced by CHANGE for Dying Matters and the National End of Life Care [read the full story…]
In the late 1990s, a group of people concerned about the quality of palliative care being offered to people with learning disabilities started a voluntary organiation now known as the PCPLD Network. The work of the network has raised awareness of the issue and also supported the research agenda into this topic. This current qualitative [read the full story…]
