Advance care planning in dementia nursing homes with family carers

Josie Dixon considers a paired-cluster randomised controlled trial of an advance care planning intervention, called the Family Carer Decision Support (FCDS) intervention, undertaken by Kevin Brazil and colleagues (2018) in dementia nursing homes.

[read the full story...]

Antipsychotics for delirium in palliative care: new RCT suggests non-drug alternatives are needed

shutterstock_73696783

Samei Huda highlights a recent RCT of antipsychotics (risperidone and haloperidol) versus placebo for symptoms of delirium in palliative care, which suggests we need non-drug alternatives for this group of patients.

[read the full story...]

End-of-life care for people with learning disabilities. Views of service-users and family carers

support_shutterstock_262437695 (2)

People with learning disabilities are living longer than ever before, so more people are likely to need palliative care services and end-of-life care.

Here, Fawn Harrad looks at a study, which set out to listen specifically to the views of people with a learning disability and family carers in receipt of palliative care services.

[read the full story...]

Nuffield Trust offers an insight into the costs of end of life care

shutterstock_150470876

This report from the Nuffield Trust is an important addition to the literature base on end of life care as it attempts to quantify the costs involved in end of life care, from the perspectives of the various services involved.  Although there are limitations to the cost estimates, which are explicitly acknowledged, the findings will [read the full story…]

Dementia through the eyes of a carer: What would you want for your relative?

shutterstock_178273391

Josephine Neale summarises a recent review of qualitative evidence that finds carers’ views are mixed and lie on a spectrum of acceptance of their relative as actively dying with dementia.

[read the full story...]

Combination of clinical and managerial expertise transform local healthcare, case studies demonstrate

Three trees, shaped as heads, during different seasons

This collection of case studies is aimed at all people involved in the development and delivery of quality health services, in particular, commissioners, local authorities, voluntary sectors, and health professionals in all settings, including primary and secondary care. Some of the CCGs are also working with organisations from the retail sector, for example John Lewis. [read the full story…]

“Commissioners should ensure sustained and effective delivery of children’s palliative care” says guide

Hands holding across clouds

Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. This short guide has been written for Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. Commissioners need to be aware that palliative care for children is very different to palliative care for adults, [read the full story…]

Breaking bad news to people with learning disabilities website full of practical guidance

hands

Earlier this week, we posted about a study by Dr Tuffrey-Wijne and her colleagues which described the process of the development of guidelines to support decision making about disclosure or non-disclosure of bad news about life limiting illness to people with learning disabilities. That study was part of a broader programme of research that has [read the full story…]

New film aims to enable people with learning disabilities to talk about death and dying

Capture

Last week we posted about a study looking at end of life are for people with learning disabilities through the experiences of the staff supporting them. This week, we would like to draw your attention to a new film that has been produced by CHANGE for Dying Matters and the National End of Life Care [read the full story…]

End of life care for people with learning disabilities explored through experiences of support staff

Support

In the late 1990s, a group of people concerned about the quality of palliative care being offered to people with learning disabilities started a voluntary organiation now known as the PCPLD Network. The work of the network has raised awareness of the issue and also supported the research agenda into this topic. This current qualitative [read the full story…]