Independent living: what matters most to very old people?

Older people with learning disabilities need opportunities to speak for themselves

Jill Manthorpe reports on an Australian qualitative study on what independent living means to very old people.

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Challenges in respecting autonomy in end-of-life care of people with learning disabilities

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Autonomy is defined as the freedom to determine one’s own actions or behaviour. It is a value at the heart of health and social care support and those supporting people with learning disabilities are constantly striving to maintain and indeed increase the autonomy of those they provide help to. The authors of this Netherlands based [read the full story…]

Little practical engagement of people with learning disabilities with issues of death and dying despite in principle support for right to know

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We have posted previously about end of life issues for people with learning disabilities, for example, pointing to the impact of training in palliative care as well as to resources such as the films made by Change for the dying matters coalition that can be used to help include people with learning disabilities in discussions [read the full story…]

Understanding the concept of death helps people with learning disabilities during the bereavement process

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Since the formation in 1998 of the palliative care for people with learning disabilities network, there has been some work bringing together service providers and carers to enable better co-ordination of care for the benefit of people with learning disabilities who have palliative care needs. However, there is still a lack of research into the [read the full story…]

Carers' perspectives on end of life care for people with learning disabilities

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Whilst there is a developing literature aimed at a better understanding of end of life care for people with learning disabilities, there is little published that relates directly to the perspectives of paid carers. The researchers in this study used a series of focus groups to analyse responses from 64 people who worked in learning [read the full story…]