Little practical engagement of people with learning disabilities with issues of death and dying despite in principle support for right to know

Comfort

We have posted previously about end of life issues for people with learning disabilities, for example, pointing to the impact of training in palliative care as well as to resources such as the films made by Change for the dying matters coalition that can be used to help include people with learning disabilities in discussions [read the full story…]

Guidelines for disclosure of bad news to people with learning disabilities developed

Comfort1

In recent years, there has been a shift in clinical practice in relation to breaking bad news in favour of openness and the provision of information to patients. However, there is a small body of evidence that suggests that this shift in attitude has not impacted on people with learning disabilities, who appear still mainly [read the full story…]

New film aims to enable people with learning disabilities to talk about death and dying

Capture

Last week we posted about a study looking at end of life are for people with learning disabilities through the experiences of the staff supporting them. This week, we would like to draw your attention to a new film that has been produced by CHANGE for Dying Matters and the National End of Life Care [read the full story…]

Mencap report draws attention to continued failings in NHS care for people with learning disabilities

mencap

In 2007, Mencap published ‘Death by Indifference’, which chronicled failings in health care that led to the deaths of 6 people with learning disabilities. Following a review by the Health Ombudsman, the Department of Health published evidence that hospitals were failing to provide proper healthcare to people with a learning disability. This new report, five [read the full story…]