Results: 43

For: down syndrome

We need to empower & educate all stakeholders and provide person-centred care to move LD health care forward and reduce health inequity

Health information

Despite an increasing body of research evidence that demonstrates the ongoing health inequalities experienced by people with learning disabilities, there have been few changes in policy and practice.

In her debut blog, Rosalyn Hithersay presents a paper that describes a series of workshops that took place in 2013 with the aim of addressing this shift from evidence to action.

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Managing the care of adults with Down syndrome

RCGP annual health check guidance

Down syndrome is the most common cause of learning disability in the UK and life expectancy has shown a dramatic increase in the last fifty years. However, people with Down syndrome face significant health issues.

In this blog, GP Matt Hoghton looks at a recent clinical review published in the BMJ, which provides advice and guidance on managing care and support for people with Down syndrome.

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Confidential Inquiry into premature deaths WeLD Nurses tweet chat with authors and the LD Elf

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Following our recent post on what has happened since the publication of the CIPOLD Confidential Inquiry report, we joined a tweet chat hosted by WeLDNurses with two of the report’s authors: Pauline Heslop and Matt Hoghton.

It was a really lively hour with some fantastic contributions. Here we present a summary of the comments with some links to information that was mentioned during the chat itself.

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Evidence to guide treatment of dementia in people with learning disability may be lacking, but new areas of research might help

As people with learning disabilities are living longer, then they are also experiencing age related disorders such as dementia, where they have been shown to have a higher risk than the general population. Here we look at a review of the current state of knowledge which looks at a range of issues, from prevalence, assessment, treatment and future directions for research.

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Visual deficits in adults with Down syndrome explored

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Research by SeeAbility and the RNIB suggests that adults with learning disabilities are ten times more likely to be blind or partially sighted than the rest of the population. If they have severe or profound learning disabilities, then they are likely to have serious sight problems. There already exists some guidance for GPs on responding [read the full story…]

Comparison of chlorhexidine application methods on dental health of people with Down syndrome

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Periodontal disease refers to issues relating to or affecting the tissues surrounding the neck and root of a tooth, It is a significant oral health problem for people with Down syndrome. It can be a cause of tooth loss and has a number of contributing factors, which includes poor oral hygiene. Antimicrobial agents like chlorhexidine [read the full story…]

New research begins to focus on therapeutic interventions on the underlying cause of learning disabilities

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With the background of 11% of total United States government spending for disability support in 2006, the authors from Boston Children’s Hospital and Harvard Medical School highlight the financial and social imperatives to improve services for people with learning disabilities. They remind us that most of the current focus on research has been on environmental [read the full story…]

Children with Down syndrome improved developmental quotient scores through responsive teaching in small RCT

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Background There are relatively few randomised controlled trials in interventions to support people with learning disabilities. There are often significant difficulties in design in multi-element real-life interventions, along with a range of ethical issues to consider. The researchers in this Turkish study however were keen to use the methodology to look at responsive teaching for [read the full story…]

Quality of diabetes care indicators were not achieved for many people with learning disabilities in one UK health region

Good health care is dependent on cooperation between health care professionals and support workers in order to maximise care, health and functioning for people with learning disabilities

Background In 2010, Emerson and Baines in a search of the literature on healthcare issues for people with learning disabilities identified at least one study where increased rates had been reported. In 2011, we reported on a US study which found in one cohort, significantly higher prevalence of diabetes in adults with ‘cognitive limitations’ when [read the full story…]

Good practice projects in supporting people with learning disabilities identified in DH project report

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Background What is good practice when supporting people with learning disabilities? This is the question that was raised following the publication of the Government’s interim report into the events at Winterbourne View. The question was put to the National Valuing Families Forum and the National Forum for People with Learning Disabilities over the last year [read the full story…]