Rosalyn Hithersay

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Rosalyn has been working in learning disability research at University College London since early 2013 and is currently investigating dementia in people with Down syndrome with the London Down Syndrome Consortium (LonDownS). Her own PhD will investigate the attitudes of people with Down syndrome and their carers to brain imaging research, then assess the feasibility of using functional near infrared spectroscopy (fNIRS) in people with DS to identify changes in cortical blood flow that may be related to cognitive decline. Prior to working full-time in research, Rosalyn worked as a support worker for children and adults with learning disability and/or neurodevelopmental disorders. She helped lead activity clubs for young people with Autism Spectrum Conditions and provided educational support for children with special educational needs.


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Impacts of special care unit for older adults with learning disabilities and dementia evaluated over three years


People with learning disability may be more likely to develop dementia than other people.

Here Ros Hithersay looks at the findings of a three year evaluation of a special care unit for people with dementia.

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Mammography – helping women with learning disabilities to prepare

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Previous studies have suggested that women with learning disabities can feel frustrated at their lack of preparation for attendance for a mammogram.

Here Rosalyn Hithersay looks at a study, which sets out to develop a measure of preparedness for the procedure.

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We need to empower & educate all stakeholders and provide person-centred care to move LD health care forward and reduce health inequity

Health information

Despite an increasing body of research evidence that demonstrates the ongoing health inequalities experienced by people with learning disabilities, there have been few changes in policy and practice.

In her debut blog, Rosalyn Hithersay presents a paper that describes a series of workshops that took place in 2013 with the aim of addressing this shift from evidence to action.

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