Results: 54

For: advocacy

Challenges in respecting autonomy in end-of-life care of people with learning disabilities

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Autonomy is defined as the freedom to determine one’s own actions or behaviour. It is a value at the heart of health and social care support and those supporting people with learning disabilities are constantly striving to maintain and indeed increase the autonomy of those they provide help to. The authors of this Netherlands based [read the full story…]

Experience of involvement of people with learning disabilities in staff recruitment

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Background When asked to consider what makes life good for us, we might often think about the central place of choice – the choice of what we wear, what we eat, how we spend our time, the work we do – all these things will be part of our identity. If we need support, then [read the full story…]

Review finds lack of published, robust evidence on impact of advocacy in social care services

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Background A recent report from the Improving Health and Lives team suggested that over half of the advocacy organisations in the UK provide services for people with learning disabilities. The report pointed out that given the increasing move towards personalisation and the changes taking place in the organization of commissioning, that there was likely to [read the full story…]

CQC still concerned about lack of understanding of Mental Capacity Act and Deprivation of Liberty Safeguards

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Background Last week, we posted about the BIDs research, which provided a great deal of insight into the current approach to making best interests decisions under the Mental Capacity Act (2005). The Deprivation of Liberty Safeguards (DoLS) were introduced into the act and came into force in 2009 to ensure that where people who may [read the full story…]

Best interests decision research reports complexity of practice and concerns about notion of capacity

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Background The Mental Capacity Act (2005) provides a legal framework for assessing capacity in individuals. Where an individual is shown not to have capacity to make a specific decision at a specific point in time, it also provides a framework for decisions to be made on behalf of that person, in that person’s best interest. [read the full story…]

Effective circles of support recommended for success of strategies to reduce abuse in people with learning disabilities

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Background Recent events have highlighted the increased risk of abuse faced by people with learning disabilities. Local authorities regularly collect data on adult protection referrals and one study has looked at trends that have emerged from analysis of this data Last year, we posted about a study based on in-depth interviews focusing on the experience [read the full story…]

Good practice projects in supporting people with learning disabilities identified in DH project report

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Background What is good practice when supporting people with learning disabilities? This is the question that was raised following the publication of the Government’s interim report into the events at Winterbourne View. The question was put to the National Valuing Families Forum and the National Forum for People with Learning Disabilities over the last year [read the full story…]

Adults with learning disabilities were able to consent to involvement in low risk health research if given information in appropriate format

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Considering the issues relating to consent to participate in research will apply to people with learning disabilities in the same way as to any other ‘human subjects’ , but they are often excluded from research on the basis that researchers perceive ‘learning disability’ as an automatic exclusion criterion, assuming this means lack of capacity to [read the full story…]

Disability Hate Crime Awareness Week throws spotlight on campaign to improve understanding and support

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Results from an analysis of the British Crime Survey suggest that 9 out of ten disabled people have been the victims of disability hate crime However, there appears to be still a lack of clarity and understanding as to what constitutes a disability hate crime and under reporting of such crimes. Mencap’s Don’t Stand By [read the full story…]

People with learning disabilities still not getting adequate information and support to make decisions about medications

Health information

Making the decision to consent to medical treatment requires access to information, presented in clear and understandable ways. There is evidence that that people with learning disabilities do not always understand information about medications they are prescribed, for example from the medication matters project carried out at the Norah Fry centre  which produced a series of [read the full story…]