Results: 49

For: advocacy

Effective circles of support recommended for success of strategies to reduce abuse in people with learning disabilities

circle of support shutterstock

Background Recent events have highlighted the increased risk of abuse faced by people with learning disabilities. Local authorities regularly collect data on adult protection referrals and one study has looked at trends that have emerged from analysis of this data Last year, we posted about a study based on in-depth interviews focusing on the experience [read the full story…]

Good practice projects in supporting people with learning disabilities identified in DH project report

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Background What is good practice when supporting people with learning disabilities? This is the question that was raised following the publication of the Government’s interim report into the events at Winterbourne View. The question was put to the National Valuing Families Forum and the National Forum for People with Learning Disabilities over the last year [read the full story…]

Adults with learning disabilities were able to consent to involvement in low risk health research if given information in appropriate format

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Considering the issues relating to consent to participate in research will apply to people with learning disabilities in the same way as to any other ‘human subjects’ , but they are often excluded from research on the basis that researchers perceive ‘learning disability’ as an automatic exclusion criterion, assuming this means lack of capacity to [read the full story…]

Disability Hate Crime Awareness Week throws spotlight on campaign to improve understanding and support

Bullying

Results from an analysis of the British Crime Survey suggest that 9 out of ten disabled people have been the victims of disability hate crime However, there appears to be still a lack of clarity and understanding as to what constitutes a disability hate crime and under reporting of such crimes. Mencap’s Don’t Stand By [read the full story…]

People with learning disabilities still not getting adequate information and support to make decisions about medications

Health information

Making the decision to consent to medical treatment requires access to information, presented in clear and understandable ways. There is evidence that that people with learning disabilities do not always understand information about medications they are prescribed, for example from the medication matters project carried out at the Norah Fry centre  which produced a series of [read the full story…]

Training programme improves health advocacy skills for people with learning disabilities

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Recent reports on the response of the NHS in England to the health needs of people with learning disabilites have uncovered poor practice and a lack of knowledge and skills (see for example Mencap Getting it Right campaign) We posted earlier in the week about the impact of liaison nursing, one response of the health [read the full story…]

Living in own home offered choices to people with learning disabilities but location predictive of support related choices

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Choice is one of the four fundamental principles of Valuing People, the white paper produced in 2001 to guide development of support for people with learning disabilities in England. This US study looks at this principle in practice using data from the 2008–2009 National Core Indicators Project. They looked at the impact of a number [read the full story…]

Civil rights principles underpin the involvement of people with learning disabilities in research in U.S. study

Meeting

Involving people with learning disabilities in research that affects them is part of the tradition of engaging with communities to ensure that there is ‘nothing about us without us’ – a key plank of the valuing people strategy in the UK. This U.S. study set out to consider how academics understand the best way to [read the full story…]

Mutual Support offers empowerment through participation and peer support for people with learning disabilities

Meeting

We have posted before about inclusive research projects, including the work of MyLife My Choice looking at annual health checks and work to involve and engage people in secure settings in research findings. The authors of this study worked with people involved in research about how they support each other. They were looking at a [read the full story…]

Shared decision making with parents of children with autism associated with higher satisfaction

few outcome studies found, but personalisation is relatively recent in social work practice

Shared decision making with family carers is clearly espoused in policy in the UK and elsewhere. The researchers in this U.S. study were interested to look at to what extent parents of children with autism spectrum disorder reported being engaged in such shared decision making. They set out to look at the association between shared [read the full story…]