Results: 54

For: advocacy

Training programme improves health advocacy skills for people with learning disabilities

Health_meeting4

Recent reports on the response of the NHS in England to the health needs of people with learning disabilites have uncovered poor practice and a lack of knowledge and skills (see for example Mencap Getting it Right campaign) We posted earlier in the week about the impact of liaison nursing, one response of the health [read the full story…]

Living in own home offered choices to people with learning disabilities but location predictive of support related choices

Choose_Activities4

Choice is one of the four fundamental principles of Valuing People, the white paper produced in 2001 to guide development of support for people with learning disabilities in England. This US study looks at this principle in practice using data from the 2008–2009 National Core Indicators Project. They looked at the impact of a number [read the full story…]

Civil rights principles underpin the involvement of people with learning disabilities in research in U.S. study

Meeting

Involving people with learning disabilities in research that affects them is part of the tradition of engaging with communities to ensure that there is ‘nothing about us without us’ – a key plank of the valuing people strategy in the UK. This U.S. study set out to consider how academics understand the best way to [read the full story…]

Mutual Support offers empowerment through participation and peer support for people with learning disabilities

Meeting

We have posted before about inclusive research projects, including the work of MyLife My Choice looking at annual health checks and work to involve and engage people in secure settings in research findings. The authors of this study worked with people involved in research about how they support each other. They were looking at a [read the full story…]

Shared decision making with parents of children with autism associated with higher satisfaction

few outcome studies found, but personalisation is relatively recent in social work practice

Shared decision making with family carers is clearly espoused in policy in the UK and elsewhere. The researchers in this U.S. study were interested to look at to what extent parents of children with autism spectrum disorder reported being engaged in such shared decision making. They set out to look at the association between shared [read the full story…]

New website aims to bring clear and simple advice on rights to people with learning disabilities

The prescribing of psychotropics for people with intellectual disability needs to be addressed.

People with learning disabilities have faced a range of barriers when attempting to negotiate the legal system. Public law is complicated but this new guide hopes to provide clear, accurate advice in a range of areas, The guide, called ‘Know Your Rights’ has been broken down into six main themes: Housing Social and Health Care [read the full story…]

Person centred active support increased choice making opportunities for people with learning disabilities

Supporter

We have posted previously about the use of active support which involves training staff in working practices and organisational procedures to improve levels of participation and increase levels of engagement in activities. The purpose of the current study however was to look at the impact of active support approaches on other outcome measures. The researchers [read the full story…]

Advocacy benefits individuals and provides collective mechanisms to improve health and social care systems says survey

advocacy report

In the UK as a whole the most recent estimate from an Action for Advocacy survey is that 55.4% of advocacy organisations provide services for people with learning disabilities, although there is growing concern about the precarious nature of funding for many of those services. The IHAL report points to the argument that the development [read the full story…]

Self management of diabetes is possible for people with learning disabilities with the right supports

Health_Meeting-4

We posted last week about the  challenges faced by people with learning disabilities and diabetes. This New Zealand study looked at the additional challenges associated with self-management, which for people who do not have learning disabilities is encouraged. As the authors point out, this requires understanding of the disease and the implications of the actions [read the full story…]

Women with learning disabilities perceive little or no control over their lives

Womens_Group

Whilst there has been an increasing interest in developing measures of quality of life for people with learning disabilities, there has been little research looking specifically at the experiences of women with learning disabilities aged 40 years or older. This study set out to look at this specific group and to do this, worked with [read the full story…]