Josie Dixon considers a paired-cluster randomised controlled trial of an advance care planning intervention, called the Family Carer Decision Support (FCDS) intervention, undertaken by Kevin Brazil and colleagues (2018) in dementia nursing homes.
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Jill Manthorpe on a mixed methods study of what people with dementia want from end-of-life care.
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This report from the Nuffield Trust is an important addition to the literature base on end of life care as it attempts to quantify the costs involved in end of life care, from the perspectives of the various services involved. Although there are limitations to the cost estimates, which are explicitly acknowledged, the findings will [read the full story…]
This collection of case studies is aimed at all people involved in the development and delivery of quality health services, in particular, commissioners, local authorities, voluntary sectors, and health professionals in all settings, including primary and secondary care. Some of the CCGs are also working with organisations from the retail sector, for example John Lewis. [read the full story…]
Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. This short guide has been written for Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. Commissioners need to be aware that palliative care for children is very different to palliative care for adults, [read the full story…]
In the late 1990s, a group of people concerned about the quality of palliative care being offered to people with learning disabilities started a voluntary organiation now known as the PCPLD Network. The work of the network has raised awareness of the issue and also supported the research agenda into this topic. This current qualitative [read the full story…]
Since the formation in 1998 of the palliative care for people with learning disabilities network, there has been some work bringing together service providers and carers to enable better co-ordination of care for the benefit of people with learning disabilities who have palliative care needs. However, there is still a lack of research into the [read the full story…]
In common with other European countries, Ireland’s national database of people with learning disabilities has shown increasing ageing trends in prevalence rates and the biggest proportional increase in the next 5-10 years is expected to be will be among persons aged 50 years and over with the associated risks of developing diseases such as dementia. [read the full story…]
Whilst there is a developing literature aimed at a better understanding of end of life care for people with learning disabilities, there is little published that relates directly to the perspectives of paid carers. The researchers in this study used a series of focus groups to analyse responses from 64 people who worked in learning [read the full story…]
A three phase project to develop, implement, and evaluate a palliative care training programme responsive to learning needs of staff providing services and supports for individuals with learning disabilities living in long-term care settings was evaluated. Participants in the programme were asked to rate their levels of preparation and confidence, before and after receiving the [read the full story…]
