Focus group study of involvement of people with learning disabilities finds feelings of unfairness and inequality.

chat after meeting

Effective and meaningful engagement and involvement of people with learning disabilities in the services and support they receive is at the heart of current policy, with considerable effort being put into its promotion.

This article looks at the live experience of involvement of people with learning disabilities who use services using a focus group methodology.

Analysis revealed three key themes:

  1. feelings of unfairness and inequality;
  2. experiences of inclusion and power;
  3. and future visions.

It’s only right that we get involved’: service-user perspectives on involvement in learning disability services, Hoole, L. and Morgan, S. in British Journal of Learning Disabilities, 39: 5–10.

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John Northfield

After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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