Predictors of quality of life in children with learning disabilities found in social and emotional well being of parents


There is now a good body of literature concerned with the quality of life of people with learning disabilities and a number of practical approaches available to consider its measurement (for example personal outcome measures  and the Quality Network)

The research has identified five domains of quality of life: material well-being, development and activity, physical well-being, social well-being, and emotional well-being.

This longitudinal study set out to look at the perspectives of parents on these domains and on the quality of life of childrena nd young adults withl earning disabilities, The authors wanted to know whether parents’ well-being would be a predictive factor in the quality of life of their children.

They used the questionnaires with parents at two times, the first asking 147 parents, the second, only 108.

They found that social well-being of parents along with any changes in that social well-being and changes in children’s social well-being were strong predictors of quality of life for children with learning disabilities. Other factors that predicted quality of life of the children were emotional well-being of children, changes in children’s emotional well-being and changes in emotional well-being of parents. Factors that were not predictors of quality of life were material well-being of parents and health, development and activity of the children.

The authors conclude that they have identified clear predictors of quality of life in children and young adults with learning disabilities in the domains of physical well-being of the children and in the social well-being and emotional well being of the parents and the children.

Longitudinal Study of Parents’ Impact on Quality of Life of Children and Young Adults with Intellectual Disabilities, Cramm, J. & Nieboer, A in  Journal of Applied Research in Intellectual Disabilities, 25: 20–28.


Share on Facebook Tweet this on Twitter Share on LinkedIn Share on Google+
Mark as read
Create a personal elf note about this blog
Profile photo of John Northfield

John Northfield

After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

More posts

Follow me here –