People with profound and multiple learning disabilities (PMLD) are some of the most excluded in society. The recent guidance from the Department of Health (Raising our sights) suggested that services could do much better in involving people with PMLD in decision making.
The Involve Me project (a partnership between the Renton Foundation, Mencap and BILD) worked with four sites, using different creative approaches to involvement.
The project set out to discover the common messages about what works when getting people with profound and multiple disabilities more involved. The project found that, there were a number of consistent messages about how to involve people. These included, sharing interests, having fun, interaction and staff support.
The project identified 8 key messages about involvement:
• Know the person really well
• Take lots of time
• Don’t make assumptions
• Be responsive to the person
• Be creative and try out new ideas
• Learn from what the person ‘tells’ you
• Act on what you learn
• Help the person recall and share things about their life