Behavioural interventions impact on quality of life for children with fragile x syndrome

fragile x

The supporters of children with fragile X syndrome often report behaviour that challenges as a major concern. The authors of this small-scale, multiple baseline design study set out to explore whether behaviourally-based interventions might result in reductions in problem behaviour and improvements in the quality of life for 3 children with fragile X syndrome and their families.

They set out to look at intervention effects for high-priority contexts in the lives of the children, for example bedtime, running errands and toileting.

They developed a multi-component intervention plan to teach parents and the children how cope better with the particular context.

They discovered that post intervention, there were substantial improvements in the identified problem behaviours and that reports of family quality of life also showed some improvements.

The authors conclude that the results of the study show the effectiveness of behavioural interventions for children with fragile X syndrome

Behavioral Intervention for Problem Behavior in Children With Fragile X Syndrome, Moskowitz, L et al., in  American Journal on Intellectual and Developmental Disabilities,116, 6, 457-478.

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John Northfield

After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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