Results: 121

For: caregivers

Support worker attitudes a key influencer of outcomes for people with learning disabilities, but new scales needed to measure these

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Although the research base is small, it does strongly suggest that the attitudes of support workers can be key influencers of outcomes for people with learning disabilities and this would seem to be an entirely reasonable assumption. Here, Louise Phillips looks at a study which set out to not only explore the attitudes of a number of support workers in one service, but also to consider whether existing attitude measurement scales capture the range of attitudes expressed.

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Mindfulness Based Stress Reduction programmes reduced stress in mothers of children with disabilities in community sample RCT

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Mindfulness is increasingly recognised as an effective way to reduce stress and improve well-being

Here Kate van Dooren looks at a randomised controlled trial of a mindfulness based stress reduction programme with mothers of children with autism and other developmental delays to look at its impact on levels of distress over time.

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Parenting skills support programme effective for some parents, but must be tailored to individual circumstances

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Parents of children with learning disability and/or autism in seeking support with parenting skills, may have need of support with specific skills relevant to supporting their child with a disability.

Here, Kate van Dooren looks at a ‘pragmatic non-randomised’ study which evaluated a parent programme called ‘Riding the Rapids’ to see what happened to those parents who followed the programme.

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Confidential Inquiry into premature deaths WeLD Nurses tweet chat with authors and the LD Elf

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Following our recent post on what has happened since the publication of the CIPOLD Confidential Inquiry report, we joined a tweet chat hosted by WeLDNurses with two of the report’s authors: Pauline Heslop and Matt Hoghton.

It was a really lively hour with some fantastic contributions. Here we present a summary of the comments with some links to information that was mentioned during the chat itself.

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Equipping family carers with better information about in-patient assessment and treatment for people with learning disabilities

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We know that access to accurate information is crucial if people are to make good decisions about the support they get from services. If someone with a learning disability is admitted to a hospital unit for assessment or treatment for a mental health issue or in response to behaviour that is challenging support services, this can be a particularly difficult and confusing time for all concerned.

In her debut blog, Alison Giraud-Saunders, along with co-author Angela Cole, describes a booklet that she co-authored with the involvement of family members which has lots of key information on the law and people’s rights.

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Challenges in respecting autonomy in end-of-life care of people with learning disabilities

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Autonomy is defined as the freedom to determine one’s own actions or behaviour. It is a value at the heart of health and social care support and those supporting people with learning disabilities are constantly striving to maintain and indeed increase the autonomy of those they provide help to. The authors of this Netherlands based [read the full story…]

Established framework for Post Traumatic Stress Disorder can be used with some amendments for people with learning disabilities

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The psychological impact of abuse has been conceptualised as Post Traumatic Stress Disorder, but there has been little work on understanding whether this conceptualisation is appropriate and useful for adults with severe learning disabilities who may have limited communication skills. The researchers in this study set out to explore whether this established conceptual framework could [read the full story…]

BMA launches Mental Capacity Act toolkit for doctors, to raise awareness and support decision making

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The Mental Capacity Act 2005 came into force in England and Wales in 2007 to provide a legal framework for decision-making on behalf of people who cannot make decisions themselves. We have posted previously about the lack of practical knowledge of the working of the Act amongst learning disability community teams  and pointed to articles [read the full story…]

Social Workers get new practice guidance on working with people with learning disabilities with mental health needs

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Following the publication of the Winterborne View ‘concordat’ December 2012, it was agreed that the College of Social Work, in collaboration with other key groups and organisations, would produce guidance for social workers on good practice in working with people with learning disabilities who also have mental health conditions. The College of Social Work  is [read the full story…]