Results: 151

For: service user involvement

Self management of diabetes is possible for people with learning disabilities with the right supports

Health_Meeting-4

We posted last week about theĀ  challenges faced by people with learning disabilities and diabetes. This New Zealand study looked at the additional challenges associated with self-management, which for people who do not have learning disabilities is encouraged. As the authors point out, this requires understanding of the disease and the implications of the actions [read the full story…]

Including people with learning disabilities as researchers and participants in RCTs is possible

our voice

There are specific difficulties in developing an evidence base for practice in supporting people with learning disabilities. There is general agreement that some degree of sprcialist services are required, but little agreement about the nature of these services or the best method of their delivery. It may be possible to transfer ideas directly from mental [read the full story…]

Understanding the concept of death helps people with learning disabilities during the bereavement process

Comfort1

Since the formation in 1998 of the palliative care for people with learning disabilities network, there has been some work bringing together service providers and carers to enable better co-ordination of care for the benefit of people with learning disabilities who have palliative care needs. However, there is still a lack of research into the [read the full story…]

New employment relationships between with learning disabilities and their paid supporters still to be explored in the literature

chat after meeting

Modernisation of social care and the move towards personalisation have opened up opportunities for people with learning disabilities to take control of their supports through using individual budgets to employ supports. This study set out to look at the impact of this policy change on people with learning disabilities and their families employing their own [read the full story…]

A human rights approach to risk management balances individual rights within the management strategy

The prescribing of psychotropics for people with intellectual disability needs to be addressed.

A number of recent inquiries have highlighted the concern that people with learning disabilities may on occasion be denied access to their basic human rights. The authors of this study set out to explore this concern in relation to approaches to risk management taken in services, which they suggest may focus too much on professional [read the full story…]

Involving people with learning disabilities in a secure service in risk assessment supports holistic approach and promotes trust

man at fence

A keystone of policy relating to the support of people with learning disabilities in England is the involvement of service users in planning and delivering their support. This is also reflected in policy relating to risk assessment and management processes. However, the evidence from the literature at present suggests that this involvement is not yet [read the full story…]

Involve Me: Increasing the involvement of people with profound and multiple learning disabilities (PMLD) in decision-making and consultation

involve me cover

People with profound and multiple learning disabilities (PMLD) are some of the most excluded in society. The recent guidance from the Department of Health (Raising our sights) suggested that services could do much better in involving people with PMLD in decision making. The Involve Me project (a partnership between the Renton Foundation, Mencap and BILD) [read the full story…]

Active support training was effective in supporting people with learning disabilities to be engaged in daily activities

Support2

Active Support involves concerns training staff in working practices and organisational procedures to improve levels of resident participation and increase levels of engagement in activities. It is being introduced in many support services for people with learning disabilities to help bring about such improvements. This Australian study set out to look at what happened when [read the full story…]

Actively involving students with learning disabilities provides an effective check on policy implementation and quality

what about us

Given the emphasis in education on inclusion in mainstream schools and colleges for young people with additional needs, this project set out to enable young people with learning difficulties in three localities to bring about changes in their schools and colleges. The young people themselves chose the areas they wanted to focus on, which were: [read the full story…]

Service user consultation strengthens challenging behaviour strategy

Agree

A key component in any strategic service development is the consultation to seek the views of service users. This can prove problematic when consulting with people with learning disabilities, but a group of researchers in Worcestershire set out to do this in preparing a local challenging behaviour strategy They identified people to be involved in [read the full story…]