The NICE scoping guidelines on multimorbidity now thankfully include people with learning disabilities. However, the original scoping draft specifically excluded them, despite NHS England and the Department of Health commenting on the first draft.
Here, Pauline Heslop, one of the authors of the Confidential Inquiry report and a key campaigner to get people with learning disabilities included in the scope, talks about some the issues this raises.
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Following our recent post on what has happened since the publication of the CIPOLD Confidential Inquiry report, we joined a tweet chat hosted by WeLDNurses with two of the report’s authors: Pauline Heslop and Matt Hoghton.
It was a really lively hour with some fantastic contributions. Here we present a summary of the comments with some links to information that was mentioned during the chat itself.
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We know that access to accurate information is crucial if people are to make good decisions about the support they get from services. If someone with a learning disability is admitted to a hospital unit for assessment or treatment for a mental health issue or in response to behaviour that is challenging support services, this can be a particularly difficult and confusing time for all concerned.
In her debut blog, Alison Giraud-Saunders, along with co-author Angela Cole, describes a booklet that she co-authored with the involvement of family members which has lots of key information on the law and people’s rights.
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This report from the Nuffield Trust is an important addition to the literature base on end of life care as it attempts to quantify the costs involved in end of life care, from the perspectives of the various services involved. Although there are limitations to the cost estimates, which are explicitly acknowledged, the findings will [read the full story…]
The results of the feasibility study into a national clinical audit of learning disabilities was published last month. Here we consider the findings and the response from NHS England
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The Government progress report on the Confidential Inquiry into Premature Deaths of People with Learning Disabilities was published last week. In this blog, Pauline Heslop and colleagues who wrote the original Confidential Inquiry, reflect on the progress that has been made and what still needs to be done.
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John Baker reviews a recent cross-sectional study of the relationship between therapeutic alliance and service user satisfaction in mental health inpatient wards and crisis house alternatives.
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The BRAIN-ICU prospective cohort study published in the Lancet Respiratory Medicine looks at mental health outcomes and functional disabilities in a general ICU population. It explores the hypothesis that depressive symptoms after discharge are more often somatic (i.e. bodily complaints) than cognitive-affective (i.e. thought-related and mood-related complaints).
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Get involved in the NICE scoping consultation on multimorbidities. Today’s post is a little different in nature – rather than bringing you the evidence, we are asking you to get involved in helping to shape it. NICE are in the process of defining the scope of their guidelines on multimorbidity (a combination of two or [read the full story…]
Chris Sampson looks at the economic outcomes of a recent RCT of joint crisis plans to reduce compulsory treatment for people with psychosis. The study reports the potential for gains specifically among Black patients.
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