Williams syndrome is a neuro-developmental genetic disorder caused by gene deletion estimated to have a prevalence of 1 in 7,500 to 1 in 20,000 live births. Previous studies have identified anxiety as part of the behavioural phenotype of the syndrome The authors of this US study set out to look at the effectiveness and adverse [read the full story…]
Getting feedback about interventions from people with learning disabilities involves a number of challenges, including of course communication difficulties The researchers in this study were interested in how occupational therapists (OT’s) gathered feedback from people who used their services. They looked at this by asking 70 OT’s to complete a questionnaire and a subset of [read the full story…]
In the wake of the outcome of last week’s court proceedings involving support staff who worked at Winterbourne View hospital, there have been continuing calls to ensure that people with learning disabilities and complex needs are not placed far from home in isolated services, but receive local, skilled support. The Mansell report drew attention to [read the full story…]
The ADHD Voices (Voices On Identity, Childhood, Ethics and Stimulants) report was published yesterday and received a significant amount of press coverage. The outcomes of this work are a 46-page report and 18-minute video, that aim to inspire a fresh public conversation about the ethics of Attention Deficit/Hyperactivity Disorder (ADHD) diagnosis and stimulant drug treatments [read the full story…]
Shared decision making with family carers is clearly espoused in policy in the UK and elsewhere. The researchers in this U.S. study were interested to look at to what extent parents of children with autism spectrum disorder reported being engaged in such shared decision making. They set out to look at the association between shared [read the full story…]
The WHO World Health Survey is a comprehensive international survey carried out across 70 countries, which uses face-to-face, telephone and online interviews to ask questions about the health of populations, public health risk factors, coverage and availability of health services and health care spending. The survey includes a number of questions relating to mental health [read the full story…]
The possible link between the MMR vaccine and autism has been shown to have no basis in evidence, despite such a link being posited in a 1998 paper in the Lancet. The paper was subsequently retracted following a GMC investigation of its author. The researchers in this US study point out that although the link [read the full story…]
The NHS Information Centre have published their annual survey of secondary school pupils in England in years 7 to 11 (mostly aged 11 to 15). 6,519 pupils in 219 schools completed questionnaires in the autumn term of 2011. The survey report presents information on the percentage of pupils who have ever smoked, tried alcohol or [read the full story…]
iPhone users can now get daily Mental Elf updates on their phone. Visit the Apple Store now to download the app. It’s available at a special introductory price of £0.69 for the next few weeks, so get it now! iPhone app features Up to the minute alerts of the latest Mental Elf blogs, so you get to [read the full story…]
The issue of faith and participation in faith communities for people with learning disabilities is not widely explored in the literature. In 2004, the foundation for people with learning disabilities published the report of a two-year action research project to develop and describe creative ideas for meeting people’s religious needs and produced a good practice [read the full story…]
