New guides to improving support for people with profound intellectual and multiple disabilities published

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In 2010, the Department of Health published Raising our Sights, Professor Jim Mansell’s report into services and supports for people with profound intellectual and multiple disabilities.

The Government’s response was to broadly welcome the report’s recommendations and “its central message that the major obstacles to wider implementation of policy for adults with profound intellectual and multiple disabilities are prejudice, discrimination and low expectations.”

This month sees the launch of new materials from Mencap and the PMLD Network in the form of how-to guides and films to help local areas meet the needs of people, aimed at families, commissioners and others who are responsible for supporting or developing services.

There are 10 ‘how to’ guides covering

  1. Advocacy
  2. Clinical procedures
  3. Communication
  4. Health
  5. Housing
  6. Personalisation
  7. Support for families
  8. Training the workforce
  9. What people do in the day
  10. Wheelchairs

Each guide has a section to help families and others to challenge and campaign where people are not getting the right support.

In addition to the ten guides for families and supporters there is a overarching guide which for commissioners on how to make to improve commissioning strategies and develop local services which includes checklists for commissioners on each of the topics.

As well as the paper guides, there are also six films which illustrate the impact that getting the right support can have on the lives of people with profound intellectual and multiple disabilities and their families.

You can download the guides here

You can view and download the films here

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John Northfield

After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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